DOS Kongressen 2014 ·
177
Danish Translation and adaptation of Gait
Outcomes Assessment List, GOAL©Questionnaire,
a patient reported priority based outcome measure
Kirsten Nordbye-Nielsen, Unni Narayanan, Ole Rahbek, Bjarne Møller-Madsen
Department of Children’s Orthopedics , Aarhus University Hospital, Denmark;
Divisions of Orthopaedic Surgery , The Hospital for Sick Children, & Holland
Bloorview Kids Rehabilitation Hospital, Toronto, Canada; Department of
Children’s Orthopedics, Aarhus University Hospital, Denmark
Background:
2/3 of children with cerebral palsy (CP) are ambulant, and un-
dergo interventions to improve their gait, increase physical function and par-
ticipation in daily activities. The GOAL questionnaire was recently developed in
Canada, to serve as a meaningful outcome measurement for these interven-
tions. It identifies children’s and parents’ expectations of interventions, with 48
items across 6 domains, covering all ICF domains, as a priority-based outcome
instrument for children with CP.
Purpose / Aim of Study:
Danish translation and adaptation of GOAL, a patient
reported priority based outcome measure for ambulatory children with cerebral
palsy GMFCS I, II and III.
Materials andMethods:
Danish forward and backward translation of the GOAL
questionnaire was carried out in accordance with the international guideline set
up by the Translation and Cultural Adaptation Group (TCA) – Principles of Good
Practice (PGP). This guideline consists of 10 items defined as the framework
in the translation process. Preparation, Forward Translation, Reconciliation,
Back Translation, Back Translation Review, Harmonization, Cognitive debriefing,
Review of Cognitive Debriefing and Results and Finalization, Proofreading and
Final Report.
Findings / Results:
The Danish translation process, done by the ten steps, ac-
cording to the TCA group guidelines, have been carried out to Child and Parent
version of GOAL questionnaire. 12 literal and 21 conceptual changes were
made. Ex.: Gymnastics was added in item 32, Gait appearance was translated
to: Gangmønster. Questionnaires have been accepted for further validation and
reliability studies in a Danish context in 2014.
Conclusions:
The GOAL questionnaire has the potential to become a much
needed priority–based outcome measure for children with ambulatory CP un-
dergoing various gait interventions, in Denmark.
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